My Life With Half A Brain

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  • Published: 13 August 2019
  • Hey, I’m Marissa and I’ve been watching Share My Story for the last few weeks and today I wanna tell you my story of how I lost one half of my brain.
    I was a completely normal girl until I the age of 3. But then I had my first seizure. And I can still remember riding in the ambulance to get to the hospital.

    Unfortunately the seizures didn’t stop and at one point I was having seizures every 5 minutes.
    The doctors diagnosed me with “Rasmussen's encephalitis”, it’s a rare inflammatory neurological disease which affects only one half of the brain.

    The doctors gave me all kinds of medicine to treat it but nothing worked. And because the seizures kept me from falling asleep, I was close to death after a few days.
    That’s why my parents allowed the doctors to cut out the affected area, which meant I’d lose half of my brain.

    Obviously, my parents were very worried about brain damage, but I was lucky. Because I was so young, my brain was still growing and developing, so even though I only had 1 half left, my brain was able to adapt and reorganise itself.

    After the operation, the seizures stopped. And these days, the only signs of what happened are that I don’t have much control over my right upper body.

    School was hard though. I find it tough to focus for long and it took me years to learn how to read and write.

    I remember watching other kids doing things like playing on the swings or chasing each other and I’d be sad because I couldn’t join in.

    My parents didn’t have it easy either. I had a lots of mood swings growing up. And sometimes I even threw scissors and forks at them. Because whenever I was angry, I lost all my self-control. The doctors explained it by saying that my prefrontal cortex was still damaged by the brain operation I had as a 3 year old kid.

    But despite my many flaws I’m always trying my best to be a positive person. I am constantly joking and I always have a smile on my face. That’s because I know how lucky I am to be alive even though I lost half of my brain.

    Today, I’m 28 and married to the man who I love very much. I also play the violin in my spare time, although I’m not very good at it.

    I wanted to be a nurse, you know, to help others the way the doctors helped me. Unfortunately, I can’t control my right arm, so I’ve been told I wouldn’t be able to pursue that profession.

    Many years ago I dreamed of becoming a nurse, so I could help others the way the doctors helped me. Unfortunately, I can’t control my right arm, so I’ve been told I wouldn’t be able to pursue that profession.

    But instead, I became a part-time cleaner at our local hospital, and I also volunteer to spend time with patients who need someone to talk to.

    Recently, one of my former classmates was hospitalised. She was one of the girls that made fun of me back in middle school. She always said I was too dumb to be considered a human. And her comments made me feel very insecure about myself.

    But that didn’t keep me from going into her room to clean it. When she saw me, she said “oh Marissa, you are working as a cleaner now. That’s great.” [condesending voice]
    I know she looks down on me, but I don’t mind. I’m giving my best every day.

    Especially, when I’m taking care of my son, Doyle. He is 4 years old now and perfectly healthy.

    I just wanted to say how grateful I am to be alive. If it wasn’t for the doctors who operated on me, I wouldn’t be alive today. And if I’d been born 200 years ago, people would have confused my seizures with me being posses by a demon. I’m so lucky.

    Never forget that this could be your last day on earth. You might suffer a stroke tomorrow and be gone in an instant. Don’t waste your time complaining. I mean, I could spend all day thinking about what I can’t do because of my brain damage, but instead, I just spend time with the people I love and who love me back. I have a simple but good life. And that’s all that matters to me.

    Thank you for listening to my story please subscribe to this channel for more animates stories.

Comments • 5 689

  • CitizenX
    CitizenX  2 hours back

    im watching this and im feeling it

    • Animal ASMR Yoon
      Animal ASMR Yoon  2 hours back

      If ur brain is cut to half how are u talking

      • Isaiah lewis
        Isaiah lewis  3 hours back

        Well at least this has a facts in it. Next video I live without my heart

        • Jaynzel Sarabia
          Jaynzel Sarabia  4 hours back

          You are a lucky because if even you had a half brain atlist your not a stupid why me i have whole brain but i am stupid😄😄😄😄

          • Jeffery95
            Jeffery95  4 hours back

            why the fuck is the right arm moving more and more with every second the video progresses??

            • Sam Garcia
              Sam Garcia  6 hours back

              At the first I saw her with her side of her arm spinning around I was wandering that she had "abnormalitie" whatever that means comment if you know abnormal/abnormalitie

              • Jingcitube Y
                Jingcitube Y  9 hours back

                So







                Half

                • Totally Random
                  Totally Random  12 hours back

                  So happy for you but did you have to name the kid Doyle?

                  • tucker12435
                    tucker12435  12 hours back

                    I suffered a catastrophic brain injury when i was 7 and i also have a extremely hard time reading. I've been diagnosed with a mild intellectual disorder. And it's really made problems for me because whenever i'm around people i get act juvenile. It's not that i'm an immature person, or that i can't make proper decisions. I never developed emotional or behavioral maturity. I'm 27 and I'm so thankful because I met a loving caring woman in 2017 and we are happily married. God bless

                    • Allie Boswell
                      Allie Boswell  13 hours back

                      My sister has this but they didn't cut half of her brain off

                      • wiLLiam
                        wiLLiam  15 hours back

                        Ok liberal

                        • Panda Gaming
                          Panda Gaming  15 hours back

                          Well hehe you didnt lose half your brain
                          because this channel doesnt share actual stories

                          • Marisa Chacón
                            Marisa Chacón  16 hours back

                            My name is marisa too :)

                            • NM Favors
                              NM Favors  18 hours back

                              I’m pretty sure there are specific people to voice act because they all sound the same

                              • NipNeb YT
                                NipNeb YT  18 hours back

                                Thanks for putting the thought in my head that I will have a seizure stroke or that I might die tomorrow 😶

                                • Yvonne Li
                                  Yvonne Li  18 hours back

                                  This is how many brain cells she lost/or got back (whichever one you choose)

                                  • Waffler 101
                                    Waffler 101  19 hours back

                                    PewDiePie’s life with *BIG BRAIN*

                                    • DaPotatoPlays :
                                      DaPotatoPlays :  19 hours back

                                      I feel sorry for people who actually believe this

                                      • Sweet Productions
                                        Sweet Productions  19 hours back

                                        Wait...Is this HER Talking?

                                        • Vämpy _
                                          Vämpy _  19 hours back

                                          My aunt has that

                                          • PURE -_-SUN
                                            PURE -_-SUN  20 hours back

                                            wtf

                                            • Jace James
                                              Jace James  21 hours back

                                              Yeah this is half big brain time

                                              • CreeperAnimations
                                                CreeperAnimations  21 hours back

                                                Wait a minute how is your arm not broken

                                                • Simply Red
                                                  Simply Red  22 hours back

                                                  I have a full brain but it ain't working properly....

                                                  • Look at meYT
                                                    Look at meYT  1 days back

                                                    Bro if my arm did that I would be like w0t arm why u do this but it’s cool how she lives with half her brain dats cool bc its lucky u can live with half a brain

                                                    • TJMA production
                                                      TJMA production  1 days back

                                                      yoy for

                                                      • D A V I D
                                                        D A V I D  1 days back

                                                        I thought you only use half your brain

                                                        • Draven
                                                          Draven  1 days back

                                                          If the speech center of her brain had developed by then she shouldn’t be able to talk

                                                          • PabloIsSarcastic
                                                            PabloIsSarcastic  1 days back

                                                            Don’t you just hate it when you don’t have half of ur brain and still can write speak and see

                                                            • XXcode Ranger5
                                                              XXcode Ranger5  1 days back

                                                              Yoyoyoyo yooyoyoyoy

                                                              • Akvia Dodo
                                                                Akvia Dodo  1 days back

                                                                Legit copied a real story smh

                                                                • Shadow VOP
                                                                  Shadow VOP  1 days back

                                                                  If I was like that girl I’m gonna just sleep always

                                                                  • Nug Ett
                                                                    Nug Ett  1 days back

                                                                    You change your clothes quick

                                                                    • ANDREI
                                                                      ANDREI  1 days back

                                                                      What is this a roleplay in roblox?

                                                                      • Mr. E
                                                                        Mr. E  1 days back

                                                                        I bet you can make abstract paint

                                                                        • Annika_Angel #
                                                                          Annika_Angel #  1 days back

                                                                          Oh mAh Gawd

                                                                          • Deja Stewarts
                                                                            Deja Stewarts  1 days back

                                                                            Wait so did she draw these pictures?
                                                                            If so how? Did her arm get in her way?
                                                                            Me and this Marissa girl have a lot of things to talk about.

                                                                            • Alicia Doolan
                                                                              Alicia Doolan  1 days back

                                                                              And how could you speak

                                                                              • Alicia Doolan
                                                                                Alicia Doolan  1 days back

                                                                                How could you move

                                                                                • Maritza Villatoro
                                                                                  Maritza Villatoro  2 days back

                                                                                  It is like this small l

                                                                                  • Sherry Marshall
                                                                                    Sherry Marshall  2 days back

                                                                                    Its a merical you can still talk

                                                                                    • RyoPaque Q
                                                                                      RyoPaque Q  2 days back

                                                                                      Still better off than the boy with half a brain in the novelette "Anthem" by Ayn Rand.

                                                                                      • saleha abdullah
                                                                                        saleha abdullah  2 days back

                                                                                        sad 😢

                                                                                        • Anonymoose 01
                                                                                          Anonymoose 01  2 days back

                                                                                          Which half do you have tho the left half or the right half if it’s the left you have more logic than creativity and vice versa

                                                                                          • Mariyah Smith
                                                                                            Mariyah Smith  2 days back

                                                                                            how did you get on here

                                                                                            • Steven Campos
                                                                                              Steven Campos  2 days back

                                                                                              Search up" i only have half a brain" BBC stories and that's her

                                                                                              • Steven Campos
                                                                                                Steven Campos  21 hours back

                                                                                                @Shadz plus all the info matches so it can't be a coincidence

                                                                                              • Steven Campos
                                                                                                Steven Campos  21 hours back

                                                                                                @Shadz they change the names and evrything to protect their identity

                                                                                              • Steven Campos
                                                                                                Steven Campos  21 hours back

                                                                                                @Shadz they are not going to say they're real name on share my story

                                                                                              • Shadz
                                                                                                Shadz  1 days back

                                                                                                the lady on BBC is named Jodie and this girl is Marrisa

                                                                                              • Shadz
                                                                                                Shadz  1 days back

                                                                                                Steven Campos they’re different people

                                                                                            • Daniella Kosyluk
                                                                                              Daniella Kosyluk  2 days back

                                                                                              I’m so great full that she’s alive. My mother would cry if she died, so be great full that your alive!

                                                                                              • Glory Tshamakeji
                                                                                                Glory Tshamakeji  2 days back

                                                                                                «you might die tomorrow » kinda harsh